The PRP (Pityriasis Rubra Pilaris) Alliance is a 501(c)(3), nonprofit, patient advocacy organization. Our mission is to advocate for the timely and accurate diagnosis of pityriasis rubra pilaris (PRP); the implementation of more effective and accessible treatment options; an increase in PRP-specific research. is temporarily offline.

As work to salvage nearly 500 articles, 300-plus images and an archive of newsletters (598 pages), please go to the PRP Community on RareConnect website:

PRP Facebook Support Group

We also recommend that you learn more about the PRP Facebook Support Group. Founded in April 2013, the 800-plus members PRP Facebook Community share their PRP experiences and insights to help fellow PRP patients and caregivers meet the challenges of body, mind and spirit. Members share milestones of healing and the disappointment of setbacks, treatment options that have worked and those that failed. Whether you need a shoulder on which to cry or a partner for a Dance of Joy — people who care, share are the people who teach so we all learn.

Frequently Asked Questions

In the interim, you can access some of the most frequently asked questions and their answers on our RareConnect website at:

And one final point of access — Bill McCue, founder of the PRP Alliance. He can be reached via email at .